Food Allergy- Indianapolis

FARE Patient Registry

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Registries are very helpful. They can help with identifying and directing patients towards programs and projects. They can help with industry sponsored studies. Registries can be used to better understand a clinical problem and help answer many questions especially when supported by large numbers of participants. Registries can also help with awareness of a problem. It is easy to see how it can be a voice for those affected by a condition. It is also a way of organizing and standardizing a problem.

FARE has a patient registry. It is for those affected by and for those who take care of individuals with food allergy.

I signed on yesterday- even a watermelon allergy would qualify for the registry.

FEL 11/14/2017

FARE Registry Redo 1

https://www.foodallergypatientregistry.org

FARE Community Needs Assessment- Indianapolis, IN 2017

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FARE (Food Allergy Research and Education) conducted a nationwide needs assessment survey in a number of communities in the early part of this year (2017). There were 8 cities where the survey was offered; Boston, Chicago, Denver, Ann Arbor, Pittsburgh, San Diego, San Francisco, and here in Indianapolis.

The full report has consensus data and information for specific sites. I pulled the Indianapolis specific information and FARE put it in a very nice format for presentation. I also have their blessing to share this report with you.

It shows where we are doing a good job in some areas, it also shows where we need help and can do better.

The hopes are that this survey will engender enthusiasm and support for FARE and for the FARE Centers of Clinical Excellence in Food Allergy  so we can continue to make a difference for those who have and those who care for loved ones with food allergy.

We need help, we can make a difference. Leave a message on this or contact FARE to learn more how to contribute.

Indianapolis Results_PPT