Registries are very helpful. They can help with identifying and directing patients towards programs and projects. They can help with industry sponsored studies. Registries can be used to better understand a clinical problem and help answer many questions especially when supported by large numbers of participants. Registries can also help with awareness of a problem. It is easy to see how it can be a voice for those affected by a condition. It is also a way of organizing and standardizing a problem.
FARE has a patient registry. It is for those affected by and for those who take care of individuals with food allergy.
I signed on yesterday- even a watermelon allergy would qualify for the registry.
FEL 11/14/2017
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